We went to the Plastic surgeon today and they pulled the drain. The drain was placed during surgery to suck out all the inflammation fluids that were collecting at the mastectomy site. So for 12 days I had a plastic tube with bulb, that looks like a grenade, at the end that entered under my arm pit and went under the skin, down my left side, under my expander. I'm sure glad it was there, but glad it is out. I cant imagine all that fluid just being stored in my body without it. that would have hurt! I usually output 40 cc (4
Tbl spoons) a day for the first 9 days. The nurse Viki who pulled it out said my comfort level would get better. She was right, pain is a lot better now. I still feel when I bump my "breast" or wear something too tight I feel like, when your leg is asleep and you try to wake it by letting blood flow back and you happen to bump it.
OOOUCH! That's what it feels like. I really hope it gets better.
Dr.
Agarwal stayed awhile and we talked along time. Oh that feels so good when they stay and don't act rushed. I know he was double booked all day. That's so meaningful when you put so much trust in there hands, and they acknowledge it, you feel like a priority. I had a lot of questions about the next step. I'm wearing a expander inside my chest that will stretch the skin and muscle by filling it with water to accommodate the new breast. He thinks I need about 3 more fills to the expander, 3 weeks apart . So getting a new breast is about 9 weeks from now. I'm guessing.
I didn't realize, or even think about how different my sensation would be after surgery. I don't feel anything now. I know it would have been different with the lumpectomy because I would still have sensation. But the radiation would have screwed the skin integrity. I know I made the right decision. I just didn't realize that it would be so numb. I'm mourning the loss. I just realized that's okay.
Ann, my photographer, came into the docs appointment again. Shes so great she showers me with more gifts, I book about cancer etiquette-what to say to someone who is recently diagnosed. Obviously due to my "the crazy things people say" post and a cute little breast cancer bear dressed in pink scrubs. Shes always giving me things. Every visit. Shes such a great advocate. We talk about my radio active die shot experience before surgery. Was that pain really necessary? I was 30 seconds away from dream land state, they could have waited. At the time I was mentally prepared for the surgery and then came in the needles and
Whammmm! Total body shock. Slam to the soul. I had to readjust immediately to get back in surgery mode. It was too hard after being assaulted. Then off you go, your trust wavering. I wanted that time to say good bye to mentally prepare. I suggested they let us avoid that
experience while awake.
We talk about strategies to let Dr.
Neumayer and others know that probably could be handled a different way. It still adore Dr.
Neumayer. Will love her forever. She made this cancer doable. I felt her assurance that this would not be so bad the moment I met her. She truly and expert. When she told me the good news about no chemo she hugged me and didn't let go, not for awhile, even when I let up. That was beautiful.
I went grocery shopping today. While I was there I noticed that they were selling room fragrance in the shape of pink ribbon. Its crazy. I laugh because I notice more pink now and I understand why it is every where. Because everyone now knows someone close with breast cancer. Our Mothers, sisters, friends, colleagues, teachers.
I went to a card store because it our anniversary on the 13
th and Robs birthday on the 20
th so I need to buy cards, and I noticed on the counter they were selling books on hope for breast cancer survivors. I have that book I think. Is that really me, a survivor? Everything has been so fast. Its been 1 month and 10 days since I found out and everything is almost done. I feel so lucky, so blessed. Is it really over though? Most people ask me if I'm relieved that its over. Its not over. Hormone therapy will start soon and it will put me in early menopause and possible infertility. At 35. That sucks! I'm supposed to be at my sexual peak! I will have to take tamoxifen for 5 years and there a good chance that I wont be fertile when its over. My dreams of having my own 4 smart good looking kids feels far away. Also I have been reading about and meeting all this woman with recurrence. I think no way! After all that I'm doing? It will have some nerve comes back if it comes back. I definitely have to make changes things are going to be different. I want it to be. This was meant for me to work on my dreams.